The Ethics and Governance Council, chaired by Baroness Helene Hayman, is made up of members coming from a variety of perspectives, including ethics, law, medicine, medical science, social science, public consultation and community and consumer involvement. An independent Appointments Committee selected the members of the Council through a process that was in conformity with the Nolan Principles of Public Life.
- Anton Enright is a computational biologist with expertise in using large-scale data for biological and clinical research. His areas of expertise include non-coding RNAs (microRNAs and lncRNAs), statistical analysis and visualization of high-throughput sequencing experiments. His specialty is translating cutting edge computational biology to biological and clinically relevant research questions. During his time working at EMBL-EBI, an institute that focuses on the storage and dissemination of Europe’s biological data, he has dealt with a variety of data-sharing, data-privacy and data-access issues. He is a firm believer in public engagement and outreach and has been involved in public lectures, open-days and the Cambridge Science festival.
- Baroness Hayman has been a member of the House of Lords since 1996, and in 2006 became the first elected Lord Speaker. She has a wealth of experience in the health sector having served on medical ethics committees and governing bodies in the National Health Service as well as on health charities and regulators. She was first Chair of the Human Tissue Authority and is former Chair of Cancer Research UK. She is currently Chair of the board of Cambridge University Health Partners, a member of the General Medical Council and a trustee of Malaria Consortium and the Disasters Emergency Committee.
- Søren Holm is Professor of Bioethics and Director of the Centre for Social Ethics and Policy at Manchester University's School of Law. He is a medical doctor and philosopher and has previously worked at the Universities of Copenhagen and Cardiff. He holds a permanent visiting chair in Medical Ethics at the University of Oslo and is a former member of the Danish Council of Ethics. He was President of the European Society for Philosophy of Medicine and Health Care from 2008 - 2010 and is joint Editor in Chief of the Journal of Medical Ethics (2005 - 2011). His main research interests are research ethics, reproductive ethics, resource allocation in health care, and the relation between philosophy of medicine and bioethics.
- Nils Hoppe is Professor of Life Sciences Regulation and a Director of the Centre for Ethics and Law in the Life Sciences at the University of Hannover. He is a biotechnology and health lawyer and has previously worked at the University of Goettingen, at Goettingen University Medical Center, and at Browne Jacobson LLP. Nils holds an undergraduate degree in laws from Nottingham Law School and a PhD in law from the University of Hannover. He is a visiting professor in biolaw at the European School of Molecular Medicine, Milan, a visiting professor in medical law at the University of Vienna, and an associate member of the Mason Institute for Medicine, Life Sciences and the Law at the School of Law, Edinburgh. Nils is an external ethics expert for the European Commission, and a fellow and Open Section Council Member of the Royal Society of Medicine. His research interests are, amongst other things, the regulatory aspects of biobanking, and ethical, legal and social implications of genetics and genomics.
- Adrienne Hunt provides the administrative and executive support to the Council. Trained as a biochemist, she spent several years working on the Human Genome Project. During this time she was responsible for project and personnel management, including the co-ordination of the sequencing of human chromosomes 22 and 9. More recently, she worked in academia undertaking research on the ethical issues raised in the context of public health interventions and conducting an investigation of the law and practice relating to use of patents by governments with a focus on the provision of health care.
- Sally Macintyre is Professor Emeritus and Honorary Senior Research Fellow in the Institute of Health and Wellbeing, University of Glasgow. She was previously Director of that Institute, and of the MRC/CSO Social and Public Health Sciences Unit, Glasgow. A medical sociologist, she has researched socioeconomic and spatial inequalities in health across time and over the life course, using data from individuals, households and areas to improve understanding of the significance of the social and physical environment for health. Major interests include the potential of area-based health promotion initiatives, the role of neighbourhood barriers and facilitators for health, and developing an evidence-base for health improvement and reducing health inequalities. She is also interested in perceptions of risk, and the understandings and use of public health research by the public, policymakers, practitioners, and the press.
- Sheelagh McGuinness is a University Fellow based in the Centre for Health Law, Science & Policy, at Birmingham Law School. Her research interests span law and bioethics (particularly reproduction, medical migration, and disability) focusing on the interplay between law, ethics, and policy. She also sits on the Royal College of General Practitioners Medical Ethics Committee.
- Dr. Meslin is President and CEO of the Council of Canadian Academies (CCA). He joined the CCA in 2016 after 15 years as founding Director of the Indiana University Center for Bioethics, Associate Dean for Bioethics in the Indiana University School of Medicine, and Professor of Bioethics. From 1996-98 he was director of bioethics research in the ELSI program at the National Human Genome Research Institute, and from 1998-2001 he was Executive Director of the U.S. National Bioethics Advisory Commission. Dr. Meslin has more than 150 published articles and book chapters on topics in bioethics and science policy and has held academic appointments at University of Toronto, University of Oxford, University of Western Australia and University of Toulouse, where he was Pierre de Fermat Chaire d’Excellence. He is currently a visiting scholar in the Department of History and Philosophy of Science and University of Cambridge, and at the Centre for Genomics and Policy at McGill University. He has been a member of several boards including the Institute of Medicine’s Committee on Ethical and Scientific Issues in Studying the Safety of Approved Drugs; the Ethics Subcommittee to the Director of the U.S. Centers for Disease Control and Prevention; and the Board of Directors of Genome Canada. Among his honours Dr. Meslin is a Fellow of the Canadian Academy of Health Sciences, and a Chevalier de L’Order Nationale du Mérite (Knight of the National Order of Merit) for contributions to French bioethics policy.
- Turlogh O’Brien is an experienced chairman of boards and committees in three main areas – an employee owned consulting business, a non-profit distributing social enterprise and in technical/research committees and institutions. He has chaired many board and committees within Arup, the engineering design company, including one that was responsible for allocating research funds to different parts of the organisation. He chaired the Group Board of London & Quadrant Housing Trust (a large social housing business) for nine years (2006-2015), is currently Chairman of the Chartered Institute of Housing and is on the Council of the University of Southampton. He was made a CBE in 1999 for services to innovation and research in construction.
- David Walker is a writer specializing in public policy and management and a public affairs executive. Formerly Managing Director, Communications and Public Reporting at the Audit Commission and founding editor of Guardian Public, he was a leader writer and specialist correspondent for The Times and the Independent, and began his career in journalism on The Times Higher Education Supplement. His books include 'The Verdict: Did Labour change Britain' and 'Unjust Rewards', co-written with Polly Toynbee. He was for seven years a council member at the ESRC and is currently Head of Policy at the Academy of Social Science, a non-executive director at the Central and North West London NHS Foundation Trust and visiting professorial fellow at the Institute of Education, London.
- Susan E. Wallace is Lecturer of Population and Public Health Sciences in the Department of Health Sciences at the University of Leicester. Her research interests include the legal and policy implications of population-based and disease-based longitudinal cohort studies and biobanks; the ethical issues surrounding the collection, use, linking and sharing of research data; and research ethics review. She chairs the University of Leicester College of Medicine and Biological Sciences Research Ethics Committee. Currently, she is a member of the Nuffield Council on Bioethics Working Party on Biological and Health Data. She also sits on the International Cancer Genome Consortium (ICGC) Ethics and Policy Committee and the UK ICGC Prostate Project Oversight Group. She is involved in the BioSHaRE-EU (FP7) project which focuses on the development and evaluation of tools and methods for accessing and exploiting data from biobanks and cohort studies.